Privacy & IRB

Fox Trial Finder is committed to protecting the privacy and rights of volunteers. A volunteer's identity is always kept private unless the volunteer chooses to identify him or herself in a message to a coordinator. It's important that health information is shared in order to make trial matches, facilitate early additional screening, and build a database that generally helps de-risk clinical trial investment in Parkinson's disease (PD) research. Aside from a few basic pieces of information that Fox Trial Finder requires of all registered volunteers, most fields are optional — but we hope volunteers will respond to all questions, as this information contributes immeasurably to the usefulness of the tool.

Although Fox Trial Finder does not fall explicitly under the provisions of HIPAA, volunteers should feel confident that both a secure Web connection and Fox Trial Finder's commitment to confidentiality will keep their personal identity safe while using information about their health to help build a better picture of people's experiences with Parkinson's.

Additionally, Fox Trial Finder posts only trials that have received approval from an Institutional Review Board (IRB). The IRB usually comprises researchers and medical professionals, and sometimes patients. Its purpose is to ensure that the safety of study or trial participants is protected.


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