PRIVACY POLICY FOR FOX TRIAL FINDER

Thank you for visiting Fox Trial Finder and reviewing our privacy policy. This privacy policy addresses information that may be collected from users who visit this website but who do not become Registered Members as well as the personally identifiable and other information of Registered Members.

We will collect no personally identifiable information ("Personal Information") unless you choose to provide that information to us. Personal Information is information that can be used to identify or contact you, such as your name and contact information, including email address. If you provide us with Personal Information, you may delete it and withdraw from Fox Trial Finder as a Registered Member at any time by emailing support@foxtrialfinder.org.

A. Use Of Registered Member Personal Information For Internal Purposes

In order to become a Fox Trial Finder Registered Member, you must provide Fox Trial Finder with certain Personal Information, including your name and email address. For a list of all the information requested of Registered Members, click here: http://foxtrialfinder.michaeljfox.org/register/register/">http://foxtrialfinder.michaeljfox.org/register/ .

Some of this Personal Information is the same information that "covered entities" must keep private according to the U.S. Health Insurance Portability and Accountability Act of 1996 ("HIPAA") and its implementing regulations. Although MJFF and Fox Trial Finder are not "covered entities" or subject to HIPAA and its implementing regulations, HIPAA, its implementing regulations and similar patient privacy laws are used by MJFF and Fox Trial Finder as helpful guides in protecting Registered Member Personal Information.

We may contact any Registered Member to verify the accuracy of information provided. We also may contact clinical trial administrators and personnel to review and verify their registration information and eligibility of the clinical trial for inclusion within Fox Trial Finder.

B. Additional Information Automatically Collected And Stored From Visiting Users And Registered Members

Fox Trial Finder utilizes Google Analytics to collect information on users visiting the website. For more information on the data that Google Analytics collects please visit: http://www.google.com/intl/en/privacy/privacy-policy.html

Cookies and clear gifs: Fox Trial Finder uses both "session" and "persistent" cookies on this Service. A cookie is a small piece of information that is sent to your browser and stored in your computer's hard drive. The purpose of a cookie is to remember certain user inputs on this Service.

Session cookies are temporary bits of information that are erased once you exit your web browser or turn off your computer. Persistent cookies are more permanent bits of information that are placed on the hard drive of your computer and stay there unless you delete the cookie. They store information on your computer for a number of reasons, such as retrieving certain information you have previously provided (i.e., username and password), helping to determine what areas of this Service you find most valuable, and customizing this Service based on your preferences on an ongoing basis. Persistent cookies placed on your computer by this Service may hold Personal Information, but only if you are a Registered Member or have otherwise consented to the provision of Personal Information in accordance with the terms of this Policy. In addition to customization, persistent cookies will be used to provide you with better service on this Service, to compile and analyze statistics and trends, and to otherwise administer and improve this Service for your use.

This Service may also use clear gifs (also known as web beacons) in combination with cookies, in order to help Service operators understand how visitors interact with this Service. A clear gif is typically a transparent graphic image (usually 1 pixel by 1 pixel in size) that is placed on this Service, which allows this Service to measure the actions of a visitor who opens the page that contains the clear gif. Fox Trial Finder uses clear gifs to measure traffic and related behavior, and to improve your experience when visiting this Service. We also use clear gifs to manage the content available on this Service.

We use this information to help us make this Service more useful. We may use your usage data with or without your Personal Information, in order to measure this Service's performance and improve this Service’s design and functionality.

C. Sharing Information For Fox Trial Finder And Other Lawful Purposes

In General: Registered Member Personal Information will be shared by Fox Trial Finder only for the purpose of educating Registered Members about the availability of PD clinical trials and potentially eligible clinical trial participants. Fox Trial Finder will use the information submitted by PD patients, their representatives, and others interested in participating in PD clinical trials to find potentially suitable clinical trials. Fox Trial Finder will facilitate an anonymized online conversation between potential volunteers and clinical trial administrators via a secure web-based messaging system. Fox Trial Finder will send email alerts to your registered email address with notifications of a new message or new trial match. Fox Trial Finder will not further participate in the process by which potentially eligible clinical trial participants are accepted into and participate in clinical trials.

Registered Member information also may be used by MJFF, Fox Trial Finder or their designees in deidentified form, i.e. a form through which individuals are not identifiable and cannot be contacted, for the purpose of conducting PD-related research.

Registered Member and visitor information may also be collected for statistical purposes. MJFF and Fox Trial Finder sometimes perform analyses of user behavior in order to measure user interest in the various areas of this Service. We will disclose this information to third parties only in aggregate form.

We may be required by law to disclose information, including Personal Information. Although we make every effort to preserve user privacy, you are hereby notified that we will disclose Personal Information and other information captured by the Service if required by law to do so.

Consent to Disclosure : By using this Service, you understand and consent to the collection, processing, transfer and use of information for the purposes set forth by Fox Trial Finder. You hereby consent to the collection, processing and disclosure by Fox Trial Finder of your Personal Information and other information as described under this Policy, including, but not limited to, the transfer of your name and email address to MJFF, and of Personal Information relating directly to your eligibility to participate in a particular clinical trial (which does not include your name and email address) to other Registered Members who coordinate recruitment of clinical trial volunteers.

D. Links

This Service may contain links to other websites. Please be aware that Fox Trial Finder and MJFF are not responsible for the privacy practices of such other sites or the content of those sites. We encourage our users to be aware when they leave this Service and to read the privacy statements of each and every Web site that collects personally identifiable information. This privacy statement applies solely to information collected by this Service.

E. "Opt-out"/Correcting/Updating/Deleting/Deactivating Personal Information

If a Registered Member’s Personal Information changes or if a Registered Member no longer desires to use this Service, we provide a way to correct, update or delete/deactivate it by emailing support@foxtrialfinder.org . Please correct or update your information by logging in and editing your profile in your Account Settings . To "opt-out," delete or deactivate your Personal Information and relinquish your status as a Registered Member or Fox Trial Finder, send an e-mail to support@foxtrialfinder.org . We will send you an email confirming deactivation of your account

F. Updates to Privacy Policy

Fox Trial Finder may, in its sole discretion, update this Policy at any time and will post any amended Policy on this website. The amended Policy shall be effective upon posting and your access to or use of this Service following an update shall be deemed consent to the revised Policy. We urge each visitor and Registered Member to refer back to this page regularly and especially prior to providing or updating any Personal Information. This Policy may not be otherwise amended without the written consent of Fox Trial Finder.

G. Disclaimer

While Fox Trial Finder exercises all due caution to protect your privacy, we will not be held responsible for parties who attempt to illegally access this Service and intercept or access transmissions or private communications.

H. Agreement

By visiting or using Fox Trial Finder, you agree to be bound by the terms and conditions of this Privacy Policy.

I. Further Inquiry

Please direct any questions you may have about this Policy to: support@foxtrialfinder.org .