Does Outpatient Palliative Care Improve Patient-centered Outcomes in Parkinson's Disease?

Does Outpatient Palliative Care Improve Patient-centered Outcomes in Parkinson's Disease?

Recruitment Information:

Seeking volunteers with following diagnosis: PD Study Type: Interventional
Eligible Ages: 40 - 100 Status: Active, not recruiting
Time Since Diagnosis: Any may be eligible Study Focus:

Study Purpose:

The purpose of this study is to improve outcomes for persons living with Parkinson's Disease (PD) and their family caregivers. The investigators hypothesize that outpatient interdisciplinary palliative care will improve patient-centered outcomes for PD patients at high-risk for poor outcomes.

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More Details

Palliative care is an approach to caring for individuals with life-threatening illnesses that addresses potential causes of suffering including physical symptoms such as pain, psychiatric symptoms such as depression, psychosocial issues and spiritual needs. Palliative care approaches have been successfully applied to improve patient-centered outcomes in cancer as well as several chronic progressive illnesses including heart failure and pulmonary disease. To date there have been minimal attempts to apply these principles to PD although preliminary evidence suggests that PD patients have significant unmet needs under current models of care which may be amenable through a palliative care model. This study will provide critical information to forward this field including data on the comparative effectiveness of outpatient palliative care for PD versus current standards of care; effects of this intervention on cost and service utilization; and the characteristics of patients most likely to benefit from such an approach and the specific services most needed by PD patients and their caregivers.

Phase: N/A Lead Sponsor: University of Colorado, Denver
Trial ID: 004202 Sponsor Type: Other
Primary Country: Canada Additional Collaborators or Sponsors: University of California, San Francisco
Estimated Enrollment: 300 Study Start Date: October 2015
Estimated Study Completion Date: December 2018 Source:
Study Website:

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