Palliative Needs Assessment for Individuals with Parkinson Disease

This is a web-based study; travel is not required

Recruitment Information:

Seeking volunteers with following diagnosis: PD Study Type: Observational
Eligible Ages: 18 - 100 Status: Enrolling by invitation
Time Since Diagnosis: 5 - 60 years Study Focus: Anxiety, Apathy, Bradykinesia (slowness of movement), rigidity, Cognitive Deficits, Constipation/Bladder Problems, DBS/Other Neurosurgery, Depression, Dyskinesia, Dysphagia (difficulty swallowing), Dystonia, Fatigue, Gait disturbances (e.g., freezing), Hypotension (low blood pressure), Impulse Control, Neuroprotection, Pain, Postural Instability (falling), Sexual Dysfunction, Sialorrhea (excessive salivation), Sleep Disturbances, Speech Difficulties, Tremors, Wearing off

Study Purpose:

We are asking individuals who have been diagnosed with Parkinson disease for five or more years to complete a 20-30 minute online survey to better understand the needs of individuals with Parkinson disease.

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More Details

Individuals who have been diagnosed with Parkinson disease for 5 or more years are invited to complete a survey about their Parkinson disease, current symptoms, and opinions and knowledge of providers who care for those with Parkinson disease. The survey is estimated to take between 20-30 minutes to complete and can be completed fully online. For individuals who have difficulty with completing the survey, a caregiver can fill out the survey either in part or fully on behalf of the person with Parkinson disease. The data generated from the survey will be used to help to develop interventions to improve care and symptom control for individuals with Parkinson disease.

Phase: N/A Lead Sponsor: American Academy of Neurology Institute
Trial ID: 005116 Sponsor Type: Other
Primary Country: United States Additional Collaborators or Sponsors:
Estimated Enrollment: 500 Study Start Date: December 2017
Estimated Study Completion Date: April 2018 Source:
Study Website:

More Inclusion & Exclusion Criteria

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